WASHINGTON — A resolution to designate May as ALS Awareness Month was agreed to in the Senate on Tuesday. The resolution, authored by U.S. Senators Chris Coons (D-Del.) and Mike Braun (R-Ind.), Co-Chairs of the bipartisan Senate ALS Caucus, officially declares May 2020 as "ALS Awareness Month" to raise awareness of the need to expand research and treatment options for those with ALS.

Amyotrophic Lateral Sclerosis (ALS) is a fatal neurodegenerative disease that destroys the body’s ability to control muscle movement. There is no effective treatment for the disease, no known cause, and currently no cure. Senators Coons, Braun, and their colleagues have recently led the call to help ALS patients access promising treatments.

“ALS is a terrible disease still without a cure, but we’re determined to change that. The bipartisan ALS Caucus is committed to advocating for more research funding and new treatment options for those with ALS,” said Senator Coons. “I’m glad that this May we can mark ALS Awareness Month and help bring new light to the work needed to end this terrible disease.”

“I am proud to join with ALS Caucus co-chair Senator Chris Coons and my fellow senators to name May ALS Awareness Month for the thousands of families struggling with this terrible disease. Together with great advocates like the ALS Association and I Am ALS, we can make meaningful progress to bring treatments to those fighting this disease, and awareness is the first step,” said Senator Braun.

Coons and Braun launched the Senate ALS Caucus in January 2020 along with U.S. Senators Richard Blumenthal (D-Conn.), John Boozman (R-Ark.), Dick Durbin (D-Ill.), John Kennedy (R-La.), Doug Jones (D-Ala.), Lisa Murkowski (R-Alaska), Jeanne Shaheen (D-N.H.), Marsha Blackburn (R-Tenn.), Kyrsten Sinema (D-Ariz.), Tom Cotton (R-Ark.), Sheldon Whitehouse (D-R.I.), and Martha McSally (R-Ariz.). The mission of the caucus is to:

  • raise awareness about the difficulties faced by ALS patients and their families;
  • advance policies that improve the quality of life for ALS patients;
  • expand the network of support for those suffering from ALS; and
  • advocate for investments in research that will enhance our understanding of the causes of ALS, identify effective treatments, and eventually discover a cure.

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